Strategic Partnerships
Ms. Anubha Taneja Mukherjee, TPAG Member Secretary (C) with Dr. Hein Beckedam (L) WHO Representative to India and Dr Hilde De Graeve (R), Team Leader Health Systems, WHO Country Office for India on 1st Oct, National Voluntary Blood Donation Day.
Stakeholders Outreach and Engagement
We are conscious of the philosophy of the greater good of the greater number and therefore believe in engaging with our stakeholders, particularly policy makers, in a sustained and collective way.
Sixteen TPAG members from across India with Dr. Harsh Vardhan Singh, Union Minister for Health and Family Welfare, on 18th August 2019, at Delhi.
Representations and Consultations
We have been representing the interests of thalassemics in person and through our representations on topics ranging from disability guidelines (draft) and charter of patients’ rights (draft) to the policy on hemoglobinopathies (draft).
Events
We understand the importance of creating a surround sound around topics of advocacy and have accordingly been creating platforms for patients and other stakeholders to share their perspectives on such topics in the presence of decision makers and influencers.
Members of TPAG took a pledge to take steps towards a thalassemia free India with Thalassemics India’s brand ambassador and veteran actor Mr. Jackie Shroff on 8th May 2018, at Delhi.
Publications
Being in the area of advocacy, we are a fan of the written word, and our newsletter – Voice of Thalassemics – proves that! The newsletter attempts to capture areas of interest from an advocacy standpoint and is meant to be distributed to the relevant stakeholders.
Projects & Campaigns
#SafeBlood for a #SwasthBharat
Thalassemics Patients Advocacy Group (TPAG) is ready to launch its #SafeBlood campaign aimed at advocating, propagating, demonstrating and implementing global best practices related to Blood safety. To know more and support, please write to us at pagthals@gmail.com.
